Diabetes and Thalassemia - Thalforum

Vik · May 22nd, 2006, 12:59 AM

Hi Everyone,
I have been asked questions about diabetes management in Thalassemia by many members here.. unfortunately I am not able to help them.

I am hoping to get some information from all you friends out there who are coping with diabetes besides thalassemia.

I want to find out -
- How severe is the diabetes that is related to Thalassemia?
- What medication do you take (if any) to bring your sugar levels down?
- Do you take insulin or naturopathy medicines?
- What is a advise one with diabetes (and thalassemia) has for another thal who is not yet diabetic?

I would sincerely appreciate replies from the members on this very important issue.

thank you.

Vikram

pankajsethi · June 3rd, 2006, 04:03 AM

hi friends ,
hi u all know me mostly i am pankaj sethi leaving in mumbai india, i am a thal major with diabetic, yes i am a diabetic 2 , friends i am on isulin 3 times in a day longlasting act insulin 50/50 21-0-0, 30/70 0-21-21 , this is my does of insulin daiely i also go to gym and swiming , if u want that u should not be a diabetic plz take care abt ur iron level , i means feretin level do take vitamin -c, and folic acid tabs and ur regular medicin ,
do take care of ur self u know y b'coz once u got diabetic u have too suffer lot ......
regard
pankaj sethi (vicky).

azadeh · June 4th, 2006, 10:27 AM

hi friends
i am azadeh from iran.i am thalassemi and diabetic paitient.
i am on insulin 2 times a day with FBS 83 and BS 2pp 130.
i like to familiar with u if u like too please send email for me to:
azadehghasemi2002@yahoo.com
best regards

solankyno1 · June 4th, 2006, 12:24 PM

Quote:

Originally Posted by azadeh

hi friends
i am azadeh from iran.i am thalassemi and diabetic paitient.
i am on insulin 2 times a day with FBS 83 and BS 2pp 130.
i like to familiar with u if u like too please send email for me to:
azadehghasemi2002@yahoo.com
best regards

Hi Azadeh,
Welcome on the forum. We are here for interacting with each other so every member will like to be familiar with you. You go through all the threads/posts and if you like any thread just click on the "Thread Tools" on top of the thread and select "Subscribe to this Thread". A new page will open where you can subscrible to recieve the messages in your email.
In case of any problem doing so make a PM to me or VIK (our administrator).
Hope it helps.

Vik · June 8th, 2006, 10:09 PM

Thanks Pankaj and Azadeh for replying back to the questions.
There is no doubt that managing both thal and diabetes is very tough..and needs LOT of care and deligence.

Do you guys also follow strict diet regiment besides avoiding sugar and starch?

Doctors say that in thalassemia - diabetes is usually induced by iron overload when ferratin levels are quite high is that true?? I am asking this because I've noticed that someone who is keeping a low ferratin might also have diabetes...

Vik

pankajsethi · June 9th, 2006, 02:50 PM

hi vik,
yes ur right that doctor say's that in thalassemia ,diabetes is due to iron overloard when ferratin level is quite high , when i was intrduced as diabetes i have consult with many doctors they just say that it is due to iron overloard
and high blood transfusion .. and i do take care of diet , sugar, starch,, but like once in 100 days i eat some thing which is my too favr ,but when i go to some conferance or out door office work then i have to manage with my food ..

regards
pankaj sethi (vicky)

surbhi sethi · June 12th, 2006, 04:02 PM

Hieee guys,
Am writing after ages, but this is one thing which concerns me unlike Viku's tips on wedding which are a rage on our forum. So, here i am with my input. Am diabetic since 2001, on insulin twice a day.Well, diabetics need to go for regular check ups. In our case, 4 things need to be taken care of, DENTAL, EYE, FOOT AND SKIN CARE. Rest includes, regular blood tests, GLYCOSLATED HB[it tells d sugar levels of last 3 months],LIPID PROFILE for cholestrol, yearly urine and eye test. Diet, Exercise and proper treatment are v.essentiel. I was really strict with myself regarding diet bt now am a bit lenient, and work out is important.
As pankaj said, one needs to keep iron under control, well that holds true in all cases if one doesnt want to invite unwanted problems. Am not that very old to say this, but whatever has to happen , it will. We cant and wont be able to stop it, inspite of our taking XTRA care. And dont forget that thalassemics are prone to diabetes. I really used to curse my doc because he put me directly on insulin the day he got my report. I wanted to try some oral medication but according to him with my insulin level being 393 ,there was no way out except for insulin.Well, would have known if he let me try.

anyways guys, chill . take gud care of yourself and have fun

keep smiling
surbhi

surbhi sethi · June 12th, 2006, 04:06 PM

Here i am again

Sorry guys, forgOt to add something that diabetics are prone to severe mood swings. How about u, Pankaj and Azadeh? I AM REALLY FED UP WITH THIS MOOD THING. And its like hell when that happens

surbhi

pankajsethi · June 13th, 2006, 12:33 AM

hi surbhi,
i am fine what abt u , surbhi in our case the doc say's that we cant be switched on oral b,coz we r having thalassemia and we r typed 2 in diabetes , when my blood test came my sugar level was 589, and they just directly started drip's for a week continu .. then when i was discharged from hosp i was on insuline 3 time in a day , and till now i am on three times in a day on insuline , with Exercise ,diet ,regular chek-up, and lot of thing ,
let me know 1 thing GLYCOSLATED HB is done in every 3 month right , b'coz i go for three month period...

regards
pankaj sethi (vicky)

Prince · June 13th, 2006, 02:35 PM

Surbhi aur Pankaj ................ how come we never had a chat on this topic???????????????????????

Vik · June 18th, 2006, 10:03 PM

Thanks for the info - Surbhi and Pankaj.

I think this is a serious issue...
I'm also thinking that a lot of thals are not very active - especially those who dont play sports or excersice etc.. because diabetes is linked to lifestyle and with thalassemia the chances increase many folds.

Kidneys are also affected with high sugar levels i think.

pankajsethi · June 19th, 2006, 12:11 AM

yes vik kidney , lever , and all other parts of ur body but specially like eyes, ur foot, hand ,skin ,this things get effected first . so have to take care of this thing's man thal can be taken easly if u want but diabetes it cant .

regard
pankaj sethi (vicky)

namitha · June 20th, 2006, 08:45 AM

Hi Surbhi, Pankaj, Azadeh and to all who are grappling diab

After reading your threads, I feel like a heel. I am carping day-in-and-day-out because I have fractured my femur. I can't move about much until it fully heals. So my doc has put me on a diet so I don't gain unnecessary weight. Unfortunately i have a sweet tooth and a sharp temper, so being off sweets make my temper sharper. Am I ashamed now! I will happily stay away from those rosgollas, snickers, mousse, etc now on.

Thanx and keep the spirit going!

pankajsethi · June 20th, 2006, 09:58 AM

Have some from my side too , ur from bang plz have khopara nan, narayal barfe . these days i was in bangl BTM layout overhear there is lot of bakre i have see many sweet things .plz do

July 9th, 2006, 01:47 PM

i wanna ask something, GLYCOSLATED HB which tells d sugar levels of last 3 months, does it work fine wid thals.........