I want Kelfer L1 and wheatgrass tablets

[khurram101]

HI guys
This is KHURRAM MEMON from karachi pakistan.My grand parents are visting india in few days.I have ask them to buy wheatgrass tablet and L1(kelfer) for me as these medicine are not available here in pakistan.
I would like ask from indian members.which company's wheatgrass tablets are mostly used by u guys as there is many companies selling it.
2nd thing is it possible for them to buy Kelfer L1 for me are they require any of my medical reports. If you guys know about any concern doctor or thal center who can help them for medicine specially poeple near HAYDERABAD, NIZAMBAD, AHMADABAD and MUMBAI plz replay

I tooo tried to visit india but failled to get visa by embassy twice,thankfully my grandmother is visiting NIZAMBAD india next week. So any one of u guys tell which is the nearest thal care center to nizambad or ahmadabad city ?

take care u @ll
its KHURRAM memon
from PAKISTAN

[Vik]

Hello Khurram,

Welcome Aboard.

one of our members sanjayr is working with WHEATGRASS(INDIA) PUNE,MAHARASHTRA.they are manufacturing "Deerghau Wheatgrass tablets" and supplying to many Thalassemia Associations in India. Please send him a Personal Message via the thalforum and get in touch with him. I am sure he will help you out.

Vikas, Vaman ji, I hope you can help our friend from Pakistan here??

I will contact Vikas .. keep visiting the forums, we will have an update for you soon.

Vik

[vikaskapoor]

hi khurram,
well i have all the answer to your ques khurram , i live in delhi otherwise i would have bought the wheatgrass tablets for you but anyways i am sure that you cant buy l1 from here as you there are lots of requirmenst which you need to fullfill before you can have L1
1. all the medical reports.
2. prescription of the doctor from here in india.
3.and i think that you need to be registered with the company b'coz the procedure is that they keep record of all your reports and how many and when have you taken it , and if you are a 1st time buyer than you have to come through proper thal clinic or hospital .

for wheatgrass tablets , you can buy those tablets from any chemist you want but i will not recomend you that as the contents are diff and it may harm you also as it did in some cases . there are many companies also who are selling it but thats also not recomended.
you need to approach a proper thal society or clinic for that and your grandparents are going to ahmedabad then they can contact society and its president mr.vamanjani is member here also so you can send him personal message and hw will let you know each and evrything . if your grandparents arecoming anywhere near delhi then i can help them in this and will solve all your probs but anyways dont worry tou came to best place and i am sure mr.vamanjani can give you all your answers as they will be going to thier district .
i hope i answerd all you question . but if you have anything else pls let me know.and i hope you will soon come to delhi and will have a chance to meet you.

regards
vikas kapoor

[vamanjani]

Dear Khurrum,
The matter of consuming wheat grass juice was discussed during the 3rd international conference on thalassaemia last year at Delhi and Dr. Ved Marwah had submitted a research paper on the same to conclude that it is effective 50 % but he has not said anything about wheatgrass tablets.
Wheatgrass juice is tried here in Jamnagar on several patients and I regret
to state that it has not proved successful and therefore I do not advise you
to opt for the tablets as it will be a sheer waste of time and money both without any benifit. Dr. Naooman Sidiki from Pakistan who attended thisconference, perhaps, will be enlighten you better so please get in touch with him since you are based in Pakistan.
As for L1 - KELFER , what Vikas said is absolutely correct and you cannot buy this drug without the Doctors prescription which is a reality. However,if your grand parents are coming to India, they must bring a set of papers of your treatment, and see what best can be done.There may be a possibility of buing this tablets from the grey market which I do not advise. It will be better that you ask Pakistan Thalassaemia Welfare Society to import this drug officially for all their patients according to the dosage prescribed so as
to avoid any future problems.
Hope, this is clear to you. I feel that DESFERAL is the best iron chelation option and you should continue the same so far you are unable to adhere to combination therapy.
Best wishes.
Vaman Jani

[solankyno1]

Hi Khurram,
Welcome on thalforum. Its very good that your grandparents are visiting India. I hope they will enjoy their time here.
As you have asked about WheatGrass tablets, recently I have gone to Indian Red Cross Society Headquarters, New Delhi for bringing blood for my nephew (thal major) where I meet marketing agent of the company who provides "DEERGHAU" wheatgrass tablets in India (The same for vik has written.) He has given me the address which is as following-

WHEATGRASS(INDIA)
205/206, IInd Floor, "Hans Sarovar"
above Hotal Darpan, Market Yard, Pune - 411037
Tel: +91-020-24275680
Mobile : +91-020-31040380 , Mr. Vikas : +91-9422510313

Contact for Delhi Distributor:
Preet Arora
+91-9811294912
+91-9811668949

I hope it will help you. Best of luck.

Regards

[khurram101]

HI solankyno1, Vaman jani, vikaskapoor and Vik
thank U all

thanks 4 your kind response. I have heard that lots of thals in india are using wheat grass tablets.
well we all know this is a harbal madicine and can go wrong but I do take things posative.And I think there is lots of thing have been discussed about It and I think its worth to try......If its help to reduce 5% of blood supply or may be give some energy then its good to have......there is nothing wrong to try ..........well you said about kelfer buying it from grey market ....... where is this place (I mean city,area)? Is it a black market type of place ?where you can buy every thing from higher price then orignal..?no matter for me where its come from if it is as effective as like one we buy from the company then there is nothing to concern. the only thing we should look is are they selling orignal madicine in that market you mention.cause I will use it under my doctors guardian we we'll do all the necessary test which is require while using this drug.would you like to suggest any Dr. or thal socity from hyderabad or ahmedabad who can help my grand parents on that

I know there are lots of complications with Kelfer L1 too. Still I want to try it.Cause I have lots of complications using deseferal as well like skin rash, eye sight, etc..........



2nd thing you said to bring all my reports to india yes sure they will do the same and I'll try to give them few latters and a prescription too from my doctor and thal center.tell me about the thal center in ahmedabad or hyderabad is there thal center in these cities.or web site address, Email address to know who can best help them in this problem


3rd thing you said about to ask thalassaemia organizations in pakistan to import this drug. if they have been as sincere as you are with your job so it would not be a big problem for me. they are all business organizations. there 1st aim is to make money as simple as that its like business for them.My heart goes out seeing the condition of our thalasseamics as compair to other country.they only work and campaign for rasing donations and for patient of thalassamia they just use words not practical work.they didnt do any thing for prevantion ,pateints care or social Issues.

take care U @ll
its khurram memon

[vamanjani]

Hi Khurram Memon,
I wish to clarify that quite a few of the thal patients here in Jamnagar tried wheat juice/wheat grass tablets but with no difference and their duration of blood transfusion has not been extended.There is no harm in trying this medicine as it does not have any side effects besides it gives you mentle satisfaction which is a great thing.
As for buying Desferal from grey market, you do not pay more than the prescribed price but you pay less than the actuals and it is available in Mumbai. I will find out and let you know the source with price per vial.
I still insist that you must move the Pakistan Thalassaemia WelfareSocietyto move the Government to import L1 officially for all your thal patients.
Masy Allah be with you.
Vaman Jani

[khurram101]

Hi Vaman jani
I would surely agree with you.being a harbel product its not harmful and worth to try lets see what happens in up coming times.
well you wrote about "thalassamia walfare Society to move to the Goverment to Import L1 officially for all the patient"
We didn't have the single thalassamia ward in goverment hospital until may 2005.Now health minister claims that "we have 1 in capital Islamabad and I have given instruction to established thalassamia wards on other govt. hospital as well".
But I haven't seen 1 in any govt. hospitals although pakisan has about 10 million carriers of thallassemia minor and over 0.1 million patients of thallassemia major.Pakistan with the Population of one lac thalassaemics and increasing 5000 every year its a big concern for goverment and thalassaemia socites of country.the point is govt.has just failed to realised the the danger of the situation and what will be the impact in the future.We are waiting for national assembly to pass law on the pre marriage test of thalassamia minor from last 4 year's its in pending. From last 4 years many thal socities are appealing to provincial and national goverments to pass the law on blood screening of would-be couples.all tough many muslim countries have this law.So from the govt. we can't expect any thing its only up to THALASSAMIA FEDERATION OF PAKISTAN (which is established 2 years back with the help of TIF) and other charitable non profit base organizations,and also on thalassaemia related people patients and parent too to work in the betterment of thalassamics.
my self have asked my center's doctors to request their management for importing this drug from india.Didn't got any positive response all though there is two thalassamics also involve in the manegment.I think its doctor's responibilty to help their patients with every available drug and take care of their health.specially if it is affordable for all.
well beside kelfer if we see other drugs widely used by million of people here which we import from european countries.If we import them from india we'll get 20 times price differnce and save millions of dollor of revenue of pakistan.But there is lots of politics involve between two countries.so on govt. level foget it.
I my self have wrote emails to various thalassamia socities but didn't got any replay. my father wrote bunch of letters to govt. officials to national and provincial level but didn't get any positive answers.
why thalassamia socities of pakistan aren't importing kelfer ?
May be the reason for this is some one had got the licencse from the govt. to import the (an expensive oral chlator Fa.......) in the country.And the group doesn't want any one to import kelfer(the afforadable drug).If thalassaemia federation of pakistan will able to import kelfer from india.so how they will earn money? who will buy their drug? For getting license they must have given commission to the govt.official as well to get their license easily.so how come they would like people to buy other drug.
To sell their expensive drug they are doing marketing for it and I have doubt that some of doctor's from private hospitals are also helping them to sell these expensive drug.Which is very much beyond the reach of an average pakistani how can a middle class person pay 10,000 Rupees for just 100 tablets or 200 ruppes for 1 vail of injection.few of them are happy to get new European drug in the country cause they can afford it but majority of patients are still suffering and have their Iron level above 5000. Its all about money........................who care's

So the fight is on.I am not anguish by all this.One must do what ever he can and prey to god.
waiting 4 your grey market findings I hope it will help.
once again thanks 4 ur precious info.
Take care u @all
its Khurram memon

[Vik]

Khurram,

I read your post. VERY TOUCHING! You are absolutely right in all the things you pointed out. Government MUST MUST MUST help otherwise this issue wil get out of hand.

Even here in Canada, most of the work - trials, clinic, pre-natal testing, counselling, etc. is done by the government.

Thalassemia is a genetic illness and to fix the current problem and to stop future cases - the governement HAS to intervene becuase the NGO's do not have the resources to deal with the issue on a national level.

Pakistan is now making a law to have people tested for thal before marriage. This is a move forward - GREAT NEWS! BUT the issue remains
- if this proposal will actually become a law
- if this will be enforced
- if this will help is reducing the cases and
- NOT result in discrimination against Thalassemia members.

Khurram, your thoughts are appreciated, your are thinking in the right direction - keep up the fight because nothing in this life comes easy. Attitude is everything.


Vik

PS: News from Pakistan, I read yesterday.
http://www.thepeninsulaqatar.com/Dis...5062121555.xml

Couples may be tested for blood disorders before marriage


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[vamanjani]

Dear Khurram101,
Desferal is available in the grey market at approximately Rs. 85/- or so if bought in quantity.
Likewise, L1 - Kelfer is also available at Rs. 4-50 per tablet.
I do not advise you to go for Kelfer but to go for Desferal only.
When are your grand parents visiting India? Are they going to visit Delhi or Mumbai. Can they come upto Rajkot which is 200 K.M. away from Ahemdabad and three hours journey by road? If they can, our job will get much easier.
Reply immediately so that I can give you more feed back on the issue.
Vaman Jani

[khurram101]

hi Vaman jani
you mention the price of desferal dear I allready have desferal.No need of desferal.I just want the oral drug.My uncle will visit ahmedabad via mumbai next week and he'll stay for a month. I don't know what the phone contact of his there. cause he'll stay at different relatives,friends home may be at hotel as well if you would like to tell your contact or mobile no. or the procedure which will help him to get kelfer so it would be great..... sure he can come to Rajkot as well.
take care u @ll
its Khurram memon

[vamanjani]

Dear Khurrum,
Many thanks for your promt reply.
I am pleased to know that your uncle will be visiting India and will be staying
at Ahmedabad for about a month and that you need to have oral drug L1 or KELFER for iron chelation. Please give him names of as many thal childrens as you can on the basis of which the Doctor from Rajkot will have to make prescription to procure this drug from the Company Depot.
My mobile numbers or +94267 14321 or + 98242 69190 which is with my wife and my residential phone numbers are +288 2551138. I leave in Jamnagar andthere are a lot of MEMON living here in Jamnagar. By the way, what is your uncles name?Ask him to get in touch with me while he is in India.
More when I hear from you.
Vaman Jani

[vamanjani]

Hello Khurrum Memon,
What will be the total requirement of Kelfer in Mg capacity. On hearing
from you correctly, I will convey the same to my Doctor friend based in Rajkot. Kindly reply at once to enable me to do the needful.
Best wishes
Vaman Jani

[khurram101]

Hi Vaman jani
check your private messages
take care
it khurram memon

[vamanjani]

Hi Khurrum,
You require two months quota of L1 - KELFER of 500 Mg. capacity and
that your uncle Ayub will get in touch with me during his India visit which is noted. If someone is visiting after two months, than it is alright otherwise you must buy KELFER in some more quantity as I personally feel. However, choice is yours only.
Best wishes.
Vaman Jani