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Thalassemia Major Forum for Alpha and Beta Thalassemia Major blood disorder - Q's and A's, Comments and Information.

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Old March 18th, 2009, 12:03 PM   #1 (permalink)
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Information Needed on Thalasseamia patient care in the UK

Hi,

I'm seeking information on how Thalasseamia patients are taken care of in the UK and also where can I find hospitals that have Thalasseamia treatment centers..I'm a Malaysian and I am currently thinking of going there for further studies, but I'm a bit worried about how to get Thalasseamia care there and also where to get it from. If anyone knows of anything, please do let me know. If it's no trouble, I wouldn't mind a telephone number or an email address so I can get in contact with the right person to help me out. Thanks in advance for the help. =D

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Old March 18th, 2009, 12:18 PM   #2 (permalink)
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Re: Information Needed on Thalasseamia patient care in the UK

This might help U.K Thalassaemia Society

U.K. Thalassaemia Society
19 The Broadway
Southgate Circus
London
N14 6PH

Tel: 020 8882 0011
Fax: 020 8882 8618

Email : Office@ukts.org

My answers in online forums are for information only & are not intended to substitute for medical advice. Please see your personal health care provider(doctor) for further evaluation of your individual case.
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Old April 10th, 2009, 11:41 AM   #3 (permalink)
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Re: Information Needed on Thalasseamia patient care in the UK

this might help

Quote:
Originally Posted by TomK View Post
--- ENGLAND, UK ---
Well, in London THE place for Thalassaemia Major is:

The Whittington Hospital
Highgate Hill
Archway
London N19 5NF

Whittington NHS Trust Website: Home

You can call the hospital and ask to be put through to Emma Prescott, the Thalassaemia Nurse Specialist or Carol at the Thalassaemia Unit. At the moment the unit is located in Mercer's Ward but will soon (hopefully) be moving to our own Ward.

The doctor is Charge is Dr. F. Shah (female) and you can also asked to be put throught to her PA when calling the hospital.

I wouldn't like to post their email addresses here but people who want to email either Emma or Doctor Shah, can contact me. (It's not the best way of contacting them though)

However, Intermediate Thals might want to call the University College Hospital (closest tube station: Warren Street on Northern Line).

I also know people are getting transfused at St. Thomas's Hospital (closest tube station: Westminster on a few lines)

--- SCOTLAND, UK ---

In Edinburgh, I was receiving blood at the Royal Infirmary and I proudly say I was the only patient in the Hospital. I think there was another Thal patient in one of the other hospital in the whole of Edinburgh. The treatment was good regarding they don't have any expertise on Thalassaemia, but they worked very closely with the Thal experts in London.

Note: You might have to be referred through a GP (General Practitioner - and you can sign up for free in any local surgery) in Scotland before you can get blood.

Royal Infirmary of Edinburgh
1 Lauriston Place
Edinburgh, EH3 9YW Great Britain
Telephone
44-(0)131-536-1000
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