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Thalassemia Major Forum for Alpha and Beta Thalassemia Major blood disorder - Q's and A's, Comments and Information.

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Old November 20th, 2005, 09:12 AM   #31 (permalink)
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Re: Thal Clinic Contact Info

hi to all,
well at preseant i get my transfussion at:
AKUH (Aga Khan Univesity Hospital)
heametology department
ward d2
karachi- Pakistan
tel #: 4930051
they also do the bone marrow transplant over here.
__________________________________________

besides, there r various other places in karachi along with other cities in pakistan having transfussion facility for thals some of them r as follows:

FATMID FOUNDATION
34-G, Gulberg-III
near Firdous market
Lahore
Tell #: (92-42)5853491
fax #: (92-42)5863950
_____________________

~@sma

Hussaini Trust, Thalassaemia Center
43 - Rehmat Manzil, Bhurgary Road, Soldier Bazar
Karachi.
021-7238405-8

__________________________________

Fatmid Foundation (Karachi Center)
Head Office 393, Britto Road, Garden East.
Karachi
021-7225284

__________________________________

Bismillah Taqi Blood Diseases Center
NIPA Chourangi Rashid Minhas Road,
Karachi
021-4388881-2
__________________________________


Thalassaemia Treatment Center
Holy Family Hospital, Rawalpindi
Armed Forces Institute of Transfusion
Rawalpindi
0561-34188, 32905

______________________________

Armed Forces Bone Marrow Transplant Centre
Rawalpindi
0561-34011
Dept. of Paediatrics
Military Hospital, Rawalpindi
0561-31512

________________________________

Rosegirl
~@sma jamal~

a smile is an inexpensive way to improve ur looks!
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Old November 22nd, 2005, 05:26 PM   #32 (permalink)
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Re: Thal Clinic Contact Info

For Southern California:
USC Norris Cancer Hospital
Dr. Ilene Weitz
323-865-3000

Referral Center
323-865-3105
Lee Farrell

For children:
Los Angeles Childrens Hospital
Wing-Yen Wong
323-669-4628
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Old January 17th, 2006, 12:39 PM   #33 (permalink)
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Re: Thal Clinic Contact Info

Quote:
Originally Posted by karan
In Hyderabad (A.P.)INDIA,The major place is at :

1)THALASSEMIA&SICKLE CELL SOCIETY
6-3-182/2, 2nd FLOOR,
LAKE VIEW PALACE, THIS IS A DAY CARE CENTRE
ROAD NO:1,BANJARA HILLS, FROM 10.00A.M.TO 7.00P.M.
HYDERABAD 500034. 3 NURSES & A DOCTOR .
TELEPHONE NO:040-23378535.



Another place is at:
2)USHODHAYA HOSPITAL FOR
BLOOD DISORDERS, THIS IS A 24 HOURS SERVICE.
LANE BESIDE NIMS,
PUNJAGUTTA,
HYDERABAD.500082.
TELEPHONE NO:040-23391113.
Anybody can avail these for transfusion or related problem.
THESE CHANGES IN ADDRESS BE POSTED ON THE BOARD.
ANY RELATED INFORMATION CONTACT RAJESH POPLI 9848093106.
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Old August 24th, 2006, 08:42 AM   #34 (permalink)
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Re: Thal Clinic Contact Info

West Middlesex University Hospital NHS Trust,
Sunshine Ward,
Twickenham Road, Isleworth,
Middlesex, TW7 6AF

Telephone Switchboard 02085602121.

Regards,

Parag
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Old November 10th, 2006, 03:14 PM   #35 (permalink)
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Thal Care in Paris, France

Hopital TENON
Hopital de jour de Medecine
Batiment Gabriel, 1er etage,
secteur violet, porte 2

Dr. Alain Kanfer

Phone: +33(0)156016542 and 6317
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Old November 16th, 2006, 12:22 PM   #36 (permalink)
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Re: Thal Clinic Contact Info

There r several hospitals here in chandigarhthat provide Bloood Transfusions and other treatments 2 thals
Iam familiar with 2 of them.Around 2yrs back I used 2 go 2 GOV. MEDICAL COLLEGE.
P.G.I
CHANDIGARH

GOVT MEDICAL COLLEGE
SECTOR 32
CHANDIGARH

SUNNY SINGLA
T.C.W.A
CHANDIGARH
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Old December 1st, 2006, 08:04 AM   #37 (permalink)
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Re: Thal Clinic Contact Info

Thank u for thalforum, many information i got about disorder blood, specialist thalassemia arround the world hospitals and medical treatments.
I have baby 11 months got thal Major just 1 week ago, now I planning want bring my baby for medical treatment special in USA, Canada or Europe for Transplant Bone Marrow.
From this forum I got many information about hospitals that I need It, but the problem I need information detail about;
* How much cost can be for BMT with donor Macth or Unmacth ?
* How much cost for medical treatment untill patient complated fine ?

Thank u for ur reply what I need it that information soon from hospital above.

Sincerely,

Ieyun
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Old December 1st, 2006, 10:22 AM   #38 (permalink)
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Re: Thal Clinic Contact Info

Quote:
Originally Posted by ieyun
Thank u for thalforum, many information i got about disorder blood, specialist thalassemia arround the world hospitals and medical treatments.
I have baby 11 months got thal Major just 1 week ago, now I planning want bring my baby for medical treatment special in USA, Canada or Europe for Transplant Bone Marrow.
From this forum I got many information about hospitals that I need It, but the problem I need information detail about;
* How much cost can be for BMT with donor Macth or Unmacth ?
* How much cost for medical treatment untill patient complated fine ?

Thank u for ur reply what I need it that information soon from hospital above.

Sincerely,


hi ieoun
here in india
the cost of bmt is near about 15 lakhs. & a no of operations was successful in past time. it is done is vellore

Last edited by solankyno1; December 1st, 2006 at 12:17 PM..

SUNNY SINGLA
T.C.W.A
CHANDIGARH
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Old December 3rd, 2006, 10:55 AM   #39 (permalink)
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Re: Thal Clinic Contact Info

Hi all
If u ever want Blood Transfusion in Ludhiana, Punjab, India we have Dayanand Medical College and Hospital (DMC) here. There is a seperate thal. Department and ward here incharge is Dr. Praveen Sobti.
Hospital phone No. is +91-161-23042420 Thal. Ward extention no. is 543
Further more u can contact me at smartsikhguy@gmail.com Cell. Nos. +91-9888155766, +91-9815133558, +91-9417777454 only one of these numbers will is active at a time.
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Old February 12th, 2008, 02:00 PM   #40 (permalink)
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Re: Thal Clinic Contact Info

From my very brief visit I found out for Cape Town:

Dr Jacobs
Ward E5
Groteschuur hospital
Observatory, Cape Town

(State hospital)
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Old February 5th, 2009, 01:43 PM   #41 (permalink)
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Re: Thal Clinic Contact Info

hi there,

I am deseperate to get Ferriprox does anyone can help with this matter, as my niece leave in Algeria and the medication is not available. could you please help or give name of anyone who can help.

I leave in Spain Barcelona but I tried to buy it and they said That I will need a prescription which I do not have as here they do not accept algerian prescription.

Thanks guys for your help
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Old February 5th, 2009, 09:23 PM   #42 (permalink)
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Re: Thal Clinic Contact Info

Hi Tala,
If I were you, I would have tried U.K. Thalassaemia Society in London to procure iron chelating drug Ferriprox since you are based in Spain. It is just a loud thinking since you have to arrange despatch of the drug to Algeria for your neice.
Address of U.K.Thalassaemia Society is 19 THE BROADWAY, SOUTHGATE CIRCUS, LONDON N14 6PH.Freephone: 0800 7311109. Email: office@ukts.org Telephone: 020 8882 0011. Fax: 020 8882 8618
It is really pathetic to know that relations who are so very consious of treating their kin properly face such hurdle. You may, for that matter, contact NOVARTIS locally and see if they could arrange for this drug directly in Algeria.
Best wishes.
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Old February 6th, 2009, 02:56 AM   #43 (permalink)
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Re: Thal Clinic Contact Info

Hi vamanjani,

Thanks for your kind email

I did try to contact all this people and believe me that I sends email to a lot of profesor in Thalasimia in Spain and in the world, the solution of my problem is to have a prescription from UK doctors because the price of it is 1.98pound. the prescription I have is from Algeria and of course they do not accepted.
I am trying to get in contact with any doctor who will be kind enough to give me the prescription as my niece need to take Ferriprox for 10 months.

I swear that she is such brillant student and she have a lot of hope to keep fighting but sometimes is to hard for her that she miss the school I am aware that if she does not take this medication she can get a heart attack as the iron will be too much on her body. anyway I am trying to do all I can to get this medications
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Old February 6th, 2009, 09:28 PM   #44 (permalink)
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Re: Thal Clinic Contact Info

Dear Tala,
I am sorry to disturb you again but would like to know from you if DESFERAL - subcutaneous iron chelator is available in Algeria or KELFER - more commonly known in the world as L1 - another oral iron chelator?
If any of these drugs is available, you must opt immediately till you manage for EXJADE.
You may approach T.I.F. Nicocia - CYPRUS for your requirement fand I am sure, they will be able to extend all possible assistance.
Hope, you come out of this problem soon.
Best wishes.
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