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TAS Official Forum Comments, reports and reviews of T.A.S and discussions on upcoming events, meetings, conferences organised by Thalassemia Awareness Society & Thal India.

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What are your Hb Levels before transfusion?
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It is usually between 9-10 - 36.97%
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It is usually between 10-11 - 12.61%
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I do not maintain pre-transfusion Hb. - 0%
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Old August 16th, 2008, 04:03 PM   #1 (permalink)
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Thumbs up Worldwide Thalassemia Associations

HI, Everyone


International thalassemia associations:

You can also use link below:

http://www.geocities.com/HotSprings/5917/location.htm

Thalassaemia International Federation (TIF)
PO Box 28807
2083 Nicosia
Cyprus
Tel: + 357 22 319 129
Fax: + 357 22 314 552
Email: info@thalassaemia.org.cy
website:www.thalassaemia.org.cy
Business hours: 9am - 3pm (Monday–Friday GMT+2)
TIF member associations

Please note this section only contains links to those member associations that have websites.

United Kingdom Thalassaemia Society (UKTS)
Thalassaemia Society of Victoria, Australia
Brazilian Association of Thalassaemia (ABRASTA), Brazil
Chronic Care Centre, Lebanon
Penang Thalassaemia Society, Malaysia
Thalassaemics India
Thalassaemia Association of Argentina
Taiwan Thalassaemia Association
Thalassaemia Federation of Turkey
National Thalassaemia Welfare Society India
Fondazione Italiana “Leonardo Giambrone” per la Guarigione dalla Thalassemia
Association Belgo-Mediterranéenne de Lutte Contre la Thalassemie
OSCAR Netherlands
Thalassaemia Association of Hong Kong
Persatuan Thalassaemia, Malaysia
Thalassaemia Society of Pakistan
Thalassaemia Foundation of Thailand
Cooley’s Anemia Foundation
Thalassemia Foundation of Canada
Sarawak Thalassaemia, Malaysia
Bangladesh Thalassemia Foundation
Club Rainbow Thalassaemia Major Support Group, Singapore
ΠΟΣΜΑ, Greece
Ninavah Thalassemia Society
Veneto Association for the fight against Thalassaemia (AVLT), Italy


Organization: Thalassaemia International Federation
Address: P.O. Box. 28807, 2083 Nicosia
CYPRUS
Telephone: 357-2-319-129 or 357-2-319-134
Fax: 357-2-314-552 (FAX)
E-Mail: thalassaemia@cytanet.com.cy
Web Site: www.thalassaemia.org.cy


Organization: Hospital de Pediatria
Haemato-Oncologia Pichincha
Address: 1850 Buenos Aires
ARGENTINA
Telephone: 0054-1-941-8532


Organization: Australian Thalassaemia Association
333 Waverley Road
Mount Waverley
Victoria 3149
AUSTRALIA
Telephone: 00 61 03 9888 2211
Fax: 00 61 03 9888 2150
E-Mail: info@tsv.org.au
Web Site: www.tsv.org.au


Organization: Azerbaijan Thalassaemia Society
Address: Abon Box N70
Baku-Centre
370000
AZERBAIJAN
Telephone: 994-129-388-113
Fax: 994-129-388-340


Organization Bahrain National Hereditary Anemia Society
Address: P.O. Box 11399
Manama
BAHRAIN
Telephone: 0097-3-529-500
Fax: 0097-3-643-579


Organization Bangladesh Thalassemia Foundation
Address: House # 36, Road # 27
Dhanmondi, Dhaka - 1209
Bangladesh
TelePhone: 88 02 8150111
Fax: 88 02 8127397
E-Mail: info@thals.org
Web Site: http://www.thals.org



Organization: Association Belgo Mediterraneene de Lutte Centre la Thalassemie
Address: 69 Rue Eg Van Ophem
1180 Bruxelles
BELGIUM
Telephone: 377-1628 / 387-3804
E-Mail: brusselsredcell@hotmail.com
Web Site: http://erasmeinfo.ulb.ac.be/globule/index.htm


Organization: Associacao Brasiliera dos Talassemicos
Address: Al Rio Claro, 190 Bloco F
1 Andar
01332-010 Sao Paulo
BRAZIL
Telephone: 0055-11-287-5049
Fax: 0055-11-283-0918


Organization: Egyptian Thalassaemic Friends Association
Address: Ciba-Geigy Scientific Office
P.O. Box 1071
Cairo 11511
EGYPT
Telephone: 2-919388 / 2-917143
Fax: 2-913881


Organization: Association France-Hemoglobinoses
Address: 51 Boulevard Saint Jean
13010 Marseille
FRANCE
Telephone: 0033-917-87605


Organization: Panhellenic Thalassaemia Federation
Address: 1 Tzavella Street,
GR 10681, Athens
GREECE
Telephone: 0030-1-3644682 / 0030-1-8085887
Fax: 0030-1-6450510 / 0030-1-8085881


Organization: Thalassaemia Association of Hong Kong
Address: P.O. Box 44379
Shau Ki Wan Post Office
HONG KONG
Telephone: 852-889-8399
Fax: 852-289-60258
E-Mail: calvin@ln.edu.hk
Web Site: www.thalassaemia.org.hk


Organization: Thalassemics India
Address: A-9, Nizamuddin West, New Delhi - 110 013
INDIA
Tel : +(91)-(11)-24353871, 51827334
Fax : +(91)-(11)- 24353871
E-mail : thalassemicsindia@gmail.com

thalcind@yahoo.co.in

Web Site:www.thalassemicsindia.org


Organization: Indonesian Thalassemia Foundation
Address: JI, Melat #40 Cilandak Barat
Jakarta Salatan 12430
INDONESIA
Telephone: 0062-21-7510681 / 0062-21-716828
Fax: 0062-21-7975659


Organization: Iranian Thalassaemia Society
Address: P.O. Box 157875-6156
Tehran
IRAN
Telephone: 0098-21-898958
Fax: 0098-21-896812


Organization: Israeli Society of Thalassaemia
Address: P.O. Box 6488
Jerusalem 94325
ISRAEL
Telephone: 9722-785-673
Fax: 9722-765-484


Organization: Fondazione Italiana "Leonardo Giambrone" per la guarigione dalla Thalassemia
Address: Sede Fondazione
Via Savona, 56. 81030 Castelvolturno (CE)
Numero verde 800259021
Conto Corrente Postale: 47372818
ITALY
Telephone: 081 5097198
Fax: 081 8396932
E-Mail: info@fondazionegiambrone.it
Web Site: www.fondazionegiambrone.it


Organization: Jordanian Blood Diseases Association
Address: P.O. Box 6133
Amman 11118
JORDAN
Telephone: 962-6-772338
Fax: 962-6-675188


Organization: Sabah Hospital, Pediatric Department
Telephone: P.O. Box 25328
13114 Safat
KUWAIT
Fax: 00965-254-3377 / 00965-531-2400
E-Mail: 00965-531-9533


Organization: Chronic Care Centre
Address: P.O. Box 213
Hazmieh, Beirut
LEBANON
Telephone: 00961-1-456-859 / 00961-1-456-866
Fax: 00961-1-601-109


Organization: Thalassaemia Association of Malaysia
Address: #23-2, Jalan Balangkas
off Jalan Kampong Pandan
55100 Kuala Lumpur
MALAYSIA
Telephone: 603-9851141 / 603-42527062
Fax: 603-42520128
E-Mail: pertam@po.jaring.my
Web Site: www.tam.org.my


Organization: Society for Health Education
Address: M. Kothanmaage (South)
Maaveyo Magu, Male 20-01
Republic of MALDIVES
Telephone: 00960-327-117
Fax: 00960-322-221


Organization: Maltese Thalassaemia Association
Address: 11 Independence Tourist Street
Qawra SPB05
MALTA
Telephone: 00356-580496
Fax: 00356-343535


Organization: OSCAR Nederland
Address: Van Nijenrodeweg 315
1082 HB Amsterdam
Netherland
Telephone: 020-6797887
E-Mail: info@sikkelcel.nl
Web Site: http://www.thalassemie.nl


Organization: Thalassaemia Society of Pakistan
Address: 146/1 Shadmam Jail Road
Lahore
PAKISTAN
Telephone: 0092-42-759-6589
Fax: 0092-42-757-3911
E-Mail: info@thalassaemia.org.pk
Web Site: www.thalassaemia.org.pk


Organization: Associacao Portuguesa de Pais E Doentes com Hemoglobanopatias
Address: Instituto Nacional de Sancte
Ricardo Jorge, Av. Padre Cruz,
1699 Lisboa Codex
PORTUGAL
Telephone: 7-351-1-7577070
Fax: 7-351-1-7590441


Organization: Asociata Romania Pentrou Protectia Boinavilor de Thalasemie Majora
Address: Sir George Enescu #40
Bloc 6C, parter, ap. 2
Sector 2
73418 Bucharest
ROMANIA
Telephone: 0040-1-659-4964


Organization: Research Institute for Paediatric Haematology
Address: 113 Leninsky Drive
Moscow 117513
RUSSIA
Telephone: 7-95-434-8141
Fax: 7-95-434-8678


Organization: Saudi Thalassemia Society
King Abdulaziz University
Address: King Fahd Medical Research Centre
P.O. Box 6615
Jeddah 21452
SAUDI ARABIA
Telephone: 00966-2-6403844
Fax: 00966-2-6952076


Organization: South Africa Thalassaemia Association
Address: 26 Robin Street
Kharwastan
Durban 4092
SOUTH AFRICA
Telephone: 27-31-413442


Organization: Hospital de la Santa Cruz, Sant PauServe, d'Hematologia
Address: Adva S. Antoni ma Claret 167
08025 Barcelona
SPAIN
Telephone: 34-3-256-1554


Organization: Kurunegala Thalassaemia Association
Address: Regional Centre
General Hospital
Kurunegala
SRI LANKA
Telephone: 94-37-22261 / 94-37-22262
Fax: 94-37-22260


Organization: Doctress Faizeh Al-Quobaili
Address: P.O. Box 6735
Damascus University
Damascus
SYRIA


Organization: Thalassaemia Association of Taiwan
Address: #7 Chung-Shan S. Road
Taipei
TAIWAN
Republic of China
Telephone: 02-397-0800 ext.5353 Fax: 02-321-4799


Organization: Thalassaemia Foundation of Thailand
Department of Pediatrics
Address: Siriraj Hospital
Bangkok 10700
THAILAND
Telephone: 0066-2-411-3010
Fax: 0066-2-412-1371
E-Mail: nchamnon@ratree.psu.ac.th
Web Site: www.thal.psu.ac.th


Organization: ALPHATT Tunisie
Hospital d'Enfants
Address: Bab Saadoun
1007 Tunis
TUNISIA
Telephone: 216-1-663500
Fax: 216-1-262521


Organization: TADAD (Thalassemia Dayanisma Dernegi)
Address: Posta Kutusu 403
Kadikoy
81310 Istanbul
TURKEY
Telephone: 90-216-358-0071
Telephone: 90-216-449-2493
Fax: 90-216-449-2494
E-Mail: malyali@turk.net


Organization: U.K. Thalassaemia Society
Address: 19 the Broadway
Southgate Circus
London N14 6PH
UNITED KINGDOM
Telephone: 0208-882-0011
Fax: 0208-882-8618
E-Mail: office@ukts.org
Web Site http://www.ukts.org


Organization: Gabriella Antunez
Address: Montevideo
URUGUAY
Fax: 598-02-218402


Organization: Society for Inherited & Severe Blood Disorders
Haematology Treatment Centre
Address: General Hospital
P.O. Box 421
Port of Spain
Trinidad
WEST INDIES
Telephone: 001-809-624-3261
Fax: 001-809-625-4765

To do Something for Someone......
vijayan k
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Old August 20th, 2008, 05:48 AM   #2 (permalink)
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Posts: 37
Re: Worldwide Thalassemia Associations

Organization: Thalassaemiehilfe ohne Grenzen e.V.
Juergen M. Beith (President)
Salierstr. 1/1
D-71334 Waiblingen
Germany
Telephone: 0049 - 7151-920316
Fax: 0049 - 7151-920316
E-Mail: thalassaemiehilfe_ohne_grenzen@yahoo.de
Web Site www.thog-net.org (just under construction)
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Old August 24th, 2008, 06:28 AM   #3 (permalink)
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Re: Worldwide Thalassemia Associations

Thanks
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Old September 8th, 2008, 01:33 AM   #4 (permalink)
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Re: Worldwide Thalassemia Associations

This is great data for all of us to save..thanks aton....
love
gagan
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Old August 1st, 2009, 08:13 AM   #5 (permalink)
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Posts: 37
Re: Worldwide Thalassemia Associations

Hello alltogether,

We have changed our provider.
You will find "Thalassaemiehilfe ohne Grenzen" here now:

Thalassämiehilfe ohne Grenzen e. V. :: Home

English language pages will follow soon.

Kind regards, thog
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