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November 16th, 2008, 09:40 PM
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#1 (permalink)
| | New Member
Join Date: Mar 2008
Posts: 8
|  iron overload
hi gud day im EDWIN 37 yr old and thalassemia minor from the Philippines, Manila my iron increase from 980 down to 920 then the latest is 1,200 my hematologist is requesting me to take medication named exjade intake once a day from Novartis Philippines, anybody tell me it is safe? or no side effiects? and it so expensive. please advice thanks.
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November 16th, 2008, 10:01 PM
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#2 (permalink)
| | Premium Member
Join Date: May 2005 Location: Hyderabad (A.P.)
Posts: 262
| Re: iron overload
Quote:
Originally Posted by edwin  hi gud day im EDWIN 37 yr old and thalassemia minor from the Philippines, Manila my iron increase from 980 down to 920 then the latest is 1,200 my hematologist is requesting me to take medication named exjade intake once a day from Novartis Philippines, anybody tell me it is safe? or no side effiects? and it so expensive. please advice thanks. | You are a Thal Minor & your iron is increasing so stop taking iron increasing medicine also to eat non iron rich food.
Please get tested for the Serrum Ferritin & Liver Function test to start using Exjade, the cost factor is your affordability.
with regards
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November 17th, 2008, 09:12 PM
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#3 (permalink)
| | Thalforum Member
Join Date: Oct 2004 Location: Toronto
Posts: 1,257
| Re: iron overload
Just curious... are you taking blood transfusions too?
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December 8th, 2008, 01:12 PM
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#4 (permalink)
| | Member
Join Date: Nov 2008
Posts: 15
| Re: iron overload
Please take 2nd opinion before starting such medicines. Thanks
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December 9th, 2008, 03:10 AM
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#5 (permalink)
| | Member
Join Date: Sep 2008
Posts: 40
| Re: iron overload
Stop eating iron rich food, and ask to your doctor for serrum ferritin test.
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December 10th, 2008, 09:20 PM
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#6 (permalink)
| | New Member
Join Date: Mar 2008
Posts: 8
| Re: iron overload
Quote:
Originally Posted by Vik Just curious... are you taking blood transfusions too? |
sorry for the delay im not taking blood transfusions, by january 2009 im taking exjade if my iron is not decreasing
thanks be to GOD and to you
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December 25th, 2008, 09:44 AM
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#7 (permalink)
| | New Member
Join Date: Mar 2008
Posts: 8
| Re: iron overload and alkaline water
i had mild thalassemia and my serum ferritin was 1,250 two months ago and by January 2009 if my internal organs are ok im taking exjade as per advice of my doctor and i ask somebody, if you are iron overload and you drink alkaline water, your iron or serum ferritin will increased? or it is bad or good?
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December 30th, 2008, 07:17 PM
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#8 (permalink)
| | Senior Member
Join Date: Nov 2007 Location: Amsterdam/Apeldoorn
Posts: 188
| Re: iron overload
I guess it's possible. Does your body take not more iron when you anemia?
I dont have thal, but the rare anemia called pyruvate kinase deficiency and we got a link with iron overload without having transfusions. (After you'd a splectonomy, what's the spelling?)
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January 5th, 2009, 04:11 PM
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#9 (permalink)
| | Member
Join Date: Jun 2008
Posts: 46
| Re: iron overload
This actually answers some of my questions in my last post, "Iron Overload Concerns".
What I would like to know is why.... and HOW.... is it possible for us minors to get such high iron if all we're doing is eating natural iron foods??? I'm not even getting transfused like those of you who are major. This sometimes makes me have to wonder what is really happening.
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