prevention is better than cure

[vijayan]

Hi all,


we young generation have an to much big community schools, colleges, corporate offices an lot more. gathering them at one place an we should start awareness in people as well as we can help those who affected by killing dieases thalassemia



thanks & regards
from

VIJAYAN KONDEWAR
NAGPUR

[thog]

Vijayan you are very right.
Public awareness is what thalassemia needs first of all.
Our organisation estimates, that about 4,6 million children and teenager are affected by thalassaemia major.
But neither UNESCO nor UNHCO put any focus on this topic. And I fear that they do so purposely, because politidal leaders of many countries prefer to keep their eyes shut instead of implementing the necessary and costly healthcare for those who are affected by this desease.

Until today thalassemia is an orphan desease.

Regards,

thog

[Narendra]

There is no question that Prevention is better than Cure and as you mention in places like Asia where there is not much awareness. There are millions of carriers and more than half don't even know they are thal (minor).

This is a personal decision for everyone so when it comes to getting married or planning for a child it is best to get tested for thalassemia. The tough part is that even in this day and age people just ignore it when someone mentions it is a good idea to get tested for thalassemia (minor).

I think the Gynecologist should start taking into consideration that when a women's RBC show up small and RBC higher than normal, they should start thinking in the direction of trying to confirm if the women has thalassemia and then if they find out for sure that the women is thal(trait) they should suggest for the husband to get tested. This reminds me of the movie "Salaam Namaste" starring Saif Ali Khan and Preity Zinta (Preity Zinta acting as she was pregnant asks Saif Ali Khan to get tested for thalassemia(minor) mentioning that she is a carrier and wants to find out if their baby is safe) where by the movie media the director wanted to pass on the message as you say - Prevention is better than Cure

[Vik]

Vijyan one needs dedicated resources for awareness, time and lots of money.

Thog - I like your avatar (pic)

[vijayan]

hi, vik


Shall u tell me how can we help thal affected people as much as possible
your suggetions may help me a lot an i am thankful to you

[thog]

Hi Vik,

Thog - I like your avatar (pic)

thanks for your friendly comment. Unfortunately I discovered it lately which means: today. ;-)
So sorry for that.

This avatar is the logo of our charitable association. It symbolizes our earth and the thal peoples hope for medical cure of their blood cells and last but not least the red curve symbolizes the thal region on this earth which extendes from Western Africa to South East Asia.
(The thal region follows the ancient malaria region of our earth and was not carried along by migrators from the mediterranean sea to other regions as long time many people did believe. The thal trait was triggered by the malaria threat as scientists were able to prove in the recent years.)

Kind regards

thog