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Hi everyone,
My name is Radziah, or you may call me Rad, in short. I'm 35 years old, a Beta Thal Intermedia from Kuala Lumpur, Malaysia. I was officially diagnosed in 1999 although I kind of knew that I had Thal since I was young, as 3 of my siblings also have Thal (I'm the youngest in the family). My eldest brother had exactly the same condition as me; however, he passed away in 2001 at the age of 54 due to organ failures.
So far, I have not had any blood transfusion or iron chelation therapy, and I take folic acid and vitamin E daily. I'm seeing a great haemotogist here, who is one of the renowned Thal "experts" in the country. I feel fine so far, although I've had bouts of fatigue and more recently, heart palpitations. These I believe are quite common among Thals, and...they are usually signs for me to take it easy (I work as a Brand & Communications manager with an insurance firm, which can be hectic sometimes). I'm usually ok after a good rest.
I've been following this forum for Thals, friends and supporters since I came across the Yahoo! forum founded by Lisa. Even though I very seldom post messages, I've found many useful info shared by other members. I'm glad that the forum has evolved to this. Kudos to Andy & Vic! Lisa has passed on the baton to such wonderful friends like you. Great job, guys!
I hope many more Thals will join this forum and share info and experiences, both good and bad. I look forward to knowing other Thals around the world. Good luck and always keep your spirit up!
Rad
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