www.thalassemia.ca | CANADA - Thalforum

Vik · July 12th, 2005, 02:48 AM

Hello friends,

I just wanted to let everyone here know, especially those who are from Canada that Thalassemia Foundation of Canada has re-launched its website this week.

www.thalassemia.ca

There is a lot going on in Canada (Toronto), in terms of meetings with the hospital and goverment to improve care for thals and invest more $$ in clinic. Whatever info comes about will be posted on the net, So kindly take a look and give your feedback if you like.

I would also like to ask members of other thal organisations to check their info in the "Related Website" and 'Other Organisations" page and let me know if their information is accurate and up-2-date. OR if new organisations want to add their info then I will be able to help them too.

Thank you.

Vik

MELIS · November 11th, 2005, 10:38 PM

www.thalassemia.ca is a good organised site.. good information site.. perfect!

Under the topic International Sites & Links I have any suggestions..

Organization: Turkish Thalassaemia Association
Address: Posta Kutusu 403
Kadikoy
81310 Istanbul
TURKEY
Telephone: 90-216-358-0071
Fax: 90-262-641-2932

The name of this association is TADAD (Thalassemia Dayanisma Dernegi) and the telephone/fax number is not correct.

Organisation: TADAD (Thalassemia Dayanisma Dernegi)
Dr. Duru Malyali (chairman)
P.K. 403. Kadikoy
81310 Istanbul
Turkey
Tel: (+90)216.358.0071
Tel: (+90)216.449.2493
Fax: (+90216.449.2494
Email: malyali@turk.net

And I don't see the name of our organisation OSCAR, for the Netherlands..

marientina · November 12th, 2005, 03:33 AM

Cool! There is so much info on the site and it looks very nice. It does need just a little bit of copy-editing in some places. If I have time, I can give you a list of corrections. Are you in charge of making editing changes?

Vik · November 14th, 2005, 11:57 PM

Yes Marientina. I do the updates which are usually forwarded to me by our TFC members.

MELIS, the changes you suggested are done!

Thanks.

MELIS · November 15th, 2005, 11:09 AM

Quote:

Originally Posted by Vik

Yes Marientina. I do the updates which are usually forwarded to me by our TFC members.

MELIS, the changes you suggested are done!

Thanks.

Thank you Vik.. Did you have the right address and name of the Thalassemia society of The Netherlands? If you want, I can place it here?

Vik · November 24th, 2005, 08:59 PM

Quote:

Originally Posted by MELIS

Thank you Vik.. Did you have the right address and name of the Thalassemia society of The Netherlands? If you want, I can place it here?

I have picked up the address from your website Melis. Check it out .. and let me know if you need corrections.

Thanks.

Vik

MELIS · November 27th, 2005, 03:59 PM

Thanks Vik, it s correct, but the general site name of our Society is n't www.thalassemie.nl, but www.oscarnederland.nl

And the country number of The Netherlands is 0031, so the full number is 0031-20-6797887. For the Netherlands people the local number is enough, but if people will call from foreign countries, then the country number is aqquired.

Thanksss..